The Boy Whose Skin Fell Off, Where Sad and Humour Met.

  Still trying to find my style, I’ve written about various topics; some serious and tragic, others funny or helpful. At times I like to find pictures or video’s that are interesting, uplifting.

  During my last visit to YouTube, I stumbled upon a this 5 part story “The Boy Whose Skin Fell Off” Jonny Kennedy, I had watch his story a few years ago on T.V. Jonny’s story is about himself and how he suffered with Epidermoysis Bullosa, Jonny wanted to bring attention to this condition. His story is sad, tragic and filled with dispar; at the same time it’s whittey laced with humour. I couldn’t stop watching his story, I’m not ashamed to say, at times I was forced to tears watching him persevere though hid daily tribulations. Through all his pain he maintained a great sence of humour, he could make you laugh out loud without feeling guilty.

  I don’t want to do this story any injustice by trying to explain it to you, I really hope you watch his whole story; you won’t be disappointed.  

Part  2/5,  3/5,  4/5,  5/5. 

   See this story for what it is, a well told personal story that is transparent, unselfish and encouraging. His views and choices are his own and do not reflect my views on faith. Please share your comments with me and pass this great story on to other people.

We’re in this life together: Stop and look around, most often the stresses we have in life are really quite trivial; sometimes we need to be thankful for what we don’t have.


About Off The Cuff

Hard working, entrepreneurial type with a strong desire to better develop myself spiritually, physically and financially. I'm leaning towards the comedy field for this platform to help develop myself and benefit others. Occasionally I get a good idea, thought or opinion, "Off The Cuff" is my way to share it with you. All the Best.
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3 Responses to The Boy Whose Skin Fell Off, Where Sad and Humour Met.

  1. Autumn says:

    This is so sad:( when i saw this documentary i wanted to go out and do all the things i ever wanted to do seeing this made me relize that i am taking so much grantite tword everything Jonny had so much to live for and he did all the things he wanted to do although he was suffering. If there was one thing i could do it would be to shake Jonnys hand and thank him for insparation. Thanks Jonny:)

    • Off The Cuff says:

      Thank you for your response, you got out of Jonny’s story what I did. His story was and is a great lesson on life and how we should live it.
      All the best

  2. len says:

    len is in/ on storyof kennedy, it offerssomeinsight into true understanding into gift of life and a planetary link link to nature of God and a pasr present and future linkup with GOD AND CREATION. ON THE MEMORY STORY. ITS a doorway to applied time travel, what is it and does it really exists? and could there be some kind of crystal key?

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